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89 Commercial Road
Melbourne, VIC, 3004
Australia

Jeffrey Modell Foundation Centre Melbourne

News & Events

2nd Annual Symposium - " Bridging Research and Care for Patients"

Emily Edwards

The JMF Centre for Primary Immunodeficiencies Melbourne will hold its 2nd annual symposium on Friday 11th October 2019. The symposium will feature a keynote from A/Prof Mirjam van der Burg (LUMC, Leiden, The Netherlands) alongside short talks from local immunology registrars and junior researchers.

Local Speakers:

Josh Chatelier - Alfred Health

Emily Edwards - Monash University

Laine Hosking - The Royal Children’s Hospital

For any queries or to register your interest to present email: jmf-melbourne@monash.edu

The centre would like to acknowledge the support of the Australasian and New Zealand Society for Immunology (ASI) Visiting Speakers Program for their support of Mirjam’s visit to Australia.

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Recent Scientific Reports

Emily Edwards

Members of the JMF Centre Melbourne frequently collaborate to publish new case studies and scientific research relating to Primary Immunodeficiency. An up to date list of scientific reports published by the consortium can be found below:

Antibody deficiency in STAT1 gof

A case study outlining the clinical and immunological presentation of a patient with STAT1 gof. This paper investigates the mechanisms underlying antibody deficiency in this patient.


Delayed diagnosis and complications in adult PAD patients

A retrospective study of the clinical and immunological features of Australian adults with predominantly antibody deficiency (PAD).

Scientists share their research with PID patients

Emily Edwards

Dr’s Vanessa Bryant (WEHI) and Emily Edwards (Monash University) were both invited by the Immune Deficiency Foundation of Australia (IDFA) to present at their annual conference in Brisbane in April this year.

The event saw clinicians and researchers in the field of Primary Immunodeficiency present on diagnosis, treatment and research to patients with Primary and Secondary Immunodeficiencies and their families. Emily presented on “Immunotherapies for PIDs” demonstrating the range of therapies available and highlighting efforts being made in the research setting to improve therapeutic options for patients. Vanessa's presentation entitled, “CVID genotypes and phenotypes: refining biology in the age of precision medicine” discussed the diversity of clinical presentations of Combined Variable Immunodeficiency (CVID) and treatment options available for patients with defined genetic defects.

This was an invaluable opportunity to meet patients and their carers, to understand the diseases we research and the hurdles patients face on a daily basis.

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Do Something: The Jeffrey Modell Story

Emily Edwards

Over 30 years ago, the Modell’s lost their son Jeffrey to Primary Immunodeficiency. The couple’s enduring love for each other gives them the strength to fulfill their promise to him and ‘do something’ by seeking answers to what took his life. Now Jeffrey’s life & legacy live on in “Do Something: The Jeffrey Modell Story.”

We are proud to be sponsored by the Jeffrey Modell Foundation and encourage you to follow @dosomethingdoc on Facebook to get the latest updates on the release of what will be an inspirational film. The film will be released on all digital and VOD platforms worldwide on June 11th.

National Immunodeficiency Strategy

Emily Edwards

On 8th March 2019 ASCIA (Australasian Society of Clinical Immunology and Allergy) hosted a meeting in Melbourne to develop a National Immunodeficiency Strategy. The mission is to improve the health and wellbeing of people with primary immunodeficiencies (PIDs) and minimise the impact on individuals, carers, health services and the community.

Delegates from across Australia and New Zealand included clinical immunology specialists, nurses and dietitians (ASCIA members), patient organisations (AusPIPS, IDFA, IDFNZ, HAE Australasia), major research centres (JMF Melbourne, ANU, WEHI, Garvan), funding bodies (National Blood Authority and Jurisdictional Blood Committee), supply channels (Australian Red Cross Blood Service) and other potential collaborators such as NBS MedicineWise. The meeting was supported by unrestricted educational grants from CSL Behring and Grifols. The program and outcomes are not influenced by this support.

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JMF Centre Melbourne Recommends: IDFA National Conference

Emily Edwards

The IDFA national conference brings together patients, their families, clinicians, nurses and researchers to raise awareness, educate, support and advocate for those with Primary and Secondary Immune Deficiencies. The program can be viewed here.

When: Saturday 14th and Sunday 15th April 2019

Where: Novotel Hotel, 200 Creek St, Brisbane 4000

Register here

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JMF centre Melbourne at the ESID biennial meeting

Emily Edwards

Members from the JMF centre Melbourne at the  ESID biennial meeting

Members from the JMF centre Melbourne at the ESID biennial meeting

In October, nine members of the JMF centre Melbourne attended the 18th Biennial meeting of the European Society for Immunodeficiencies (ESID) in Lisbon, Portugal. ESID brings together experts from around the world to present and discuss the latest research into immunodeficiencies. The theme of this year’s meeting was “Primary Immunodeficiencies – From Fetus to the Elderly”, which aimed to bridge the gaps between basic research and clinical applications.

A/Prof Menno van Zelm and Dr Emily Edwards from the Monash University Department of Immunology both presented posters at the meeting. A/Prof van Zelm presented two posters, the first discussed a technique which may be used to improve newborn screening for PIDs involving the quantification of T-cell replication history. A/Prof van Zelm’s second poster presented a case study of a patient with X-linked agammaglobulinemia who received a stem cell transplant. Dr Edwards presented an E-Poster on a case study of CD21 deficiency which showed an unusual immunological and clinical presentation. Dr Edwards was awarded the ESID Best E-Poster Prize for her presentation.

Dr Edwards was able to attend the meeting thanks to a British Society for Immunology International Travel Grant.

A/Prof Menno van Zelm presenting his poster titled  Next generation TREC analysis to quantify extensive memory T-cell proliferation and abnormal T-cell replication in antibody deficiency, and to improve newborn screening

A/Prof Menno van Zelm presenting his poster titled Next generation TREC analysis to quantify extensive memory T-cell proliferation and abnormal T-cell replication in antibody deficiency, and to improve newborn screening

Dr Emily Edwards presenting her E-poster titled  CD21 deficiency: an unusually severe immune defect due to a homozygous point mutation

Dr Emily Edwards presenting her E-poster titled CD21 deficiency: an unusually severe immune defect due to a homozygous point mutation






Raising public awareness of Primary Immunodeficiencies

Emily Edwards

Dr Emily Edwards from the JMF centre Melbourne and the Monash University Department of Immunology has been spreading the word about PIDs around Melbourne!

On November 11th, Dr Edwards appeared on the Einstein A Go-Go program on local Melbourne radio station Triple R. She gave an excellent introduction to what PIDs are and the impacts they have on immune functioning, as well as some background into what exactly goes on in the B Cell Differentiation laboratory. Click here to have a listen to the interview, scroll through to 48.55 minutes.

Dr Edwards was also recently featured in a video by the Monash University Central Clinical School. In it, Dr Edwards describes the research she is currently undertaking on the functions of different immune cells involved in PID, with the aim of improving diagnosis, disease monitoring and treatment.

PID Discussion Group Meetings

Mark Hudson

Primary Immunodeficiency discussion group meetings are held 3-4 times per year with the aim to educate clinical specialists, registrars and laboratory scientists on clinical and immunological aspects of primary immunodeficiencies.

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PID breakfast session

Mark Hudson

The 29th Annual conference of the Australian Society of Clinical Immunology and Allergy (ASCIA)

When: 4th - 8th of September 2018
Where: National Convention Centre Canberra 
See more about the breakfast session here
Further information can be found at the conference website.

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